One of the toughest things for us to do when we have a progressive syndrome like CMT is to adapt to change.  How do we know when to make changes and what is the deciding factor?  When do we need to change?

Among the many things that remain with me after having run CMT International for 18 years are my memories of the people.  Wonderful, talented, smart people, all with CMT, who simply wanted to find out more about their disease and then get on with life.

Recently, we spoke with Dr. Lucian Sulica, MD, Associate Professor of Otorhinolaryngology at Weill Cornell Medical College in New York, about vocal cord and breathing problems related to CMT.
Through chance exposure, Dr. Sulica initially saw a few patients with
CMT and laryngea...

Almost every system in the body can be negatively affected by alcohol. Even moderate drinking can adversely affect your health, so when you combine drinking with a degenerative disease, such as diabetes or CMT, you are mixing a toxic cocktail that could do lasting damage to your b...

When it comes to getting a diagnosis of a debilitating disease like CMT, you are likely to experience a wide range of emotions. Fear, sadness, anxiety, anger and even hopelessness are common. In many ways, patients who are diagnosed with CMT will go through a cycle akin to the fiv...

Two Benefits to Make Your Life Easier
This month, HNF talks about how to apply for Social Security benefits and how to get a handicapped parking placard. For people with CMT, these two steps can go a long way to creating a better quality of life. Read below for simple steps to apply ...

Travel with Disabilities
Have you ever dreamed of visiting Italy, France, Hawaii, Australia or another distant land? If you are disabled in any way due to your CMT, don’t let your “limitations” get in the way of the traveling experiences of your dreams. In the past, we’ve p...

In January, HNF interviewed Dr. Glen Pfeffer, a prominent West Coast orthopedist who specializes in foot surgeries. We thought it only fitting to give equal time to an East Coast surgeon who specializes in treating the hands. Below, please find our discussion with Michael Hausman,...

Start the New Year off on the Right Foot—
An Interview with Glenn Pfeffer, MD
Director, Foot and Ankle Center at Cedars-Sinai Medical Center in LA
Q: One of the most prevalent visible signs of CMT is foot drop. How does this occur and what, if anyth...